InfoChagas: digital communication for better care for people concerned by Chagas disease

A study analyzes years of consultations to this platform to assess how digital resources complement healthcare systems in controlling this neglected disease

30/01/2026

People affected by Trypanosoma cruzi, the parasite that causes Chagas disease, face significant barriers to accessing healthcare and often lack adequate information and communication resources. To address this, Chagas Coalition developed in 2014 the InfoChagas digital platform. This project includes an informative website (InfoChagas.org), consultations sections, and audiovisual content to advocate and educate about different aspects of the T. cruzi and how it affects people. It is also useful as an initial approach to personalized assistance and as a guide for subsequent clinical care.

Now, professionals at ISGlobal presented a cross-sectional study analyzing consultations to the InfoChagas platform between 2016 and 2023. The team led by Elizabeth Posada and Inés Iglesias conducted quantitative and qualitative analyses of the consultants’ profiles, enquiry topics, and barriers that people at risk of having T. cruzi infection faced when seeking health care. A total of 272 consultations were received from 19 endemic and non-endemic countries. Most inquiries came from high-burden countries (Argentina, Mexico and Bolivia), with users primarily seeking information on treatment access, transmission risks, and referrals to healthcare services.

Also, there was consensus about the need for better information, education, and communication (IEC) to understand the complexity of T. cruzi infection and to demystify concepts that hinder access to healthcare. It should be noted that after the analysis range of this study, the Pan American Health Organization (PAHO) and Chagas Coalition hosted in 2025 a virtual discussion titled “Truths and Lies about Chagas Disease”, to clarify some of the most controversial misinformation and aspects associated with this Neglected Tropical Disease. Some of those queries were received precisely through the consultation channels available on the platform, and the event was followed by 1,200 people, which demonstrated great interest on Chagas disease.

In conclusion, “Analysis of the consultations on the InfoChagas digital platform” underscores the potential of digital platforms to complement healthcare systems, improve access to critical health information, and contribute to global efforts to control and manage T. cruzi infection. InfoChagas serves as an informative, communicative, educational, and supportive resource for affected individuals and people at risk across diverse geographic regions. Given the critical role of IEC strategies and the rise of healthcare technology, A digital tool such as InfoChagas has proven valuable in translating scientific knowledge into practical, accessible resources, especially for populations with limited healthcare access.

 

You can read the full article in PLOS.
Check out all the resources offered by InfoChagas.org

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